Laura Hershey: Writer, Poet, Activist, Consultant Rotating Header Image

people with disabilities

Five personal reasons why I want our lawmakers to vote FOR the health care reform bill, imperfect though it is…

Five personal reasons why I want our lawmakers to vote FOR the health care reform bill, imperfect though it is:

1. I hope that some of my disabled sisters and brothers currently in nursing facilities will be able to leave the institutions, and receive the support they need under the bill’s plan to improve Medicaid. Among other provisions, states would be offered a 6% increase in the federal Medicaid match, to encourage them to provide community-based personal attendant services.

2. I hope that some future people with disabilities — which could include any of our aging parents, our returning veterans, or anyone else among us — will be able to get the assistance they need in their own homes, without impoverishing themselves to qualify for Medicaid, through the bill’s long term care insurance services program.

3. I hope that some of my attendants who are currently unable to afford health insurance, or unable to obtain it due to pre-existing conditions, will finally have access to health care. They work incredibly hard supporting my and other people’s health, independence, and quality of life, yet this important job does not provide them with employer-sponsored health insurance. I sincerely hope there will soon be affordable, meaningful, portable coverage available to them.

4. I believe, deeply, that health care is a human right. This bill takes an incremental step toward fulfilling that right, for some people. It’s not enough, but it may be a start.

5. I want to defeat these assholes.

How to Help Haitians?

“Haiti Rocked by 7.0 Quake.” I read the news as I sat in the waiting room at Children’s Hospital, checking the New York Times website on my laptop computer. Of course I was worried about my daughter, going through a surgical procedure that was minor but nevertheless required general anesthesia. Now, less than 24 hours later, she’s fully recovered, while the reports from Port-au-Prince and surrounding areas get worse and worse. I look back to yesterday, and recognize the extraordinary privilege I was enjoying, even during that stressful afternoon. My child was getting excellent medical care, funded by the Children’s Medicaid program. I knew where my friends and loved ones were; some were with me, and some were sending me words of encouragement through the Internet. And I was in a building which (besides offering a wireless connection) stood on solid ground, with safety and stability engineered into its very structure.

Like everyone, I want to do something, however small, to help support the survival and recovery of the Haitian people. All I have to offer is a little bit of money. So where should I send it? There are a number of fine organizations that are now, or will soon be, working on the ground to help heal and rebuild. There are other groups that might waste donations on excessive administrative costs or poor management. As a member of the global disability community, I am committed to ensuring that my donation will benefit disabled people, as well as others. I won’t let my uncertainty delay my contribution, which is tiny enough, so I did some quick research, both about Haiti itself, and about current relief efforts.

Haitian Novelist Edwidge Danticat described a little bit of her country’s history on today’s episode of Democracy Now: its founding as the first black republic in the western hemisphere, followed by the refusal of many other countries to recognize its independence; also its crushing international debt and resulting poverty. Haiti has endured colonialism, economic oppression, hurricanes, and social turmoil. This earthquake, said Danticat, “seems like the abyss of a very long and painful history of natural and political disasters.”

In the context of such a desperately poor society, people with disabilities have few opportunities for health, integration, and safety. According to one source I found, this small country’s population includes around 800,000 disabled people.

Disabled children, in particular, are often sacrificed for their families’ economic survival. According to the United Nations, as reported last year by the BBC, many of Haiti’s 200,000 children with mental or physical disabilities wind up living on the streets — or in orphanages, which is often worse. A UNICEF official is quoted as saying that only a quarter of Haiti’s 600 child care institutions are legal, and subject to any monitoring. In the others, children are often abused physically, sexually, and mentally.

Natural disasters always exacerbate these kinds of pre-existing social atrocities. And unfortunately, relief efforts don’t always take into account the needs of people with disabilities. I was glad to hear that Habitat for Humanity is already planning to go in and help low-income Haitians rebuild homes. However, as I was reading through Habitat’s website, I was disappointed to discover that their commitment to building homes accessible to people with disabilities, adopted several years ago in response to accessible housing advocates, applies only to homes they build in the United States. No such policy extends to their international projects.

So how best to help? There are the tried-and-true non-governmental organizations that do outstanding humanitarian work, and that are already mobilizing to provide aid in Haiti, including:

Medicins Sans Frontieres / Doctors Without Borders
http://www.doctorswithoutborders.org/index.cfm

UNICEF
https://secure.unicefusa.org/site/Donation2?df_id=6680&6680.donation=form1

Oxfam
https://secure.oxfamamerica.org/site/Donation2?idb=1826472882&df_id=3560&3560.donation=form1

Also, friends and other people I respect have recommended the following:

The Lambi Fund of Haiti
http://www.lambifund.org/

Partners In Health
http://www.pih.org/home.html

I was looking for a more disability-specific group, with the necessary infrastructure and integrity to provide effective assistance. Then I got an e-mail from my fellow advocate, Paul Timmons, who announced that Portlight Strategies Inc., an organization he’s worked with for some time, is now mobilizing to provide medical equipment, shelter, and food for people with disabilities in Haiti. Portlight helped a lot of people during the Gulf Coast hurricanes over the last few years. They are preparing to send a container full of equipment and supplies to Haiti in the next few days. They are also working with a community of Catholic nuns in Port-au-Prince who will be opening shelters. Portlight needs money to help pay the costs of shipping the equipment, and to buy food and other shelter supplies.

So that’s where I sent my measly fifty bucks. I would feel fine about supporting any of the other organizations listed above, and would be interested in knowing where readers of this blog are sending their support. Feel free to post comments, along with links to worthy organizations.

What the Obama Victory Means to Me

The election of Barack Obama has so many different meanings. Around the world, millions of people watched yesterday as Obama declared victory, and each one experienced her or his own particular mix of emotions. Some, of course, were reacting to the changes ahead with dismay, anger, even fear. But a large majority were clearly moved by feelings of joy, relief, anticipation, astonishment, expectation, healing and — that word that has rung across the land throughout this campaign — hope.

I see his triumph from a variety of perspectives.

As a Coloradan, I’m elated that our state went so blue! Even though Obama had already reached the requisite 270 electoral votes before Colorado’s ballots were counted, I certainly feel more at home here in my home state than I ever have before. (And I’m proud of all the hours that my sister-in-law Lynn Marie, and my nephews Henry and Daniel, put into canvassing Denver neighborhoods for the Obama campaign.)

As a person with a disability, I felt a powerful sense of belonging when Obama, during his victory speech, acknowledged the diversity and inclusiveness of the United States — “young and old, rich and poor, Democrat and Republican, black, white, Hispanic, Asian, Native American, gay, straight, disabled and not disabled…” During his campaign, Obama convened some very smart disability policy advisers, and crafted a thoughtful, progressive disability issues platform. Nevertheless, his election night speech was the first time that I had heard Obama implicitly tell the whole nation that disabled people are an integral part of our society.

As an activist, I’m excited about the possibilities for grassroots advocacy and change from the bottom up. During the formative years of his career, Obama worked as a community organizer, and I believe he still respects and values that process. Throughout his campaign, he has challenged us as citizens to engage in our communities, to work proactively for the changes we want. I am confident that he was referring to more than just getting him elected. For activists, just as for the President-elect, the real work is just beginning.